Michael Goldberg

We're honored to share that Judi and I sat down with Laura Bonnell for her Living with Cystic Fibrosis podcast — and the episode, "Beyond CF: A Rare Disease Conversation with the Goldbergs," is live now. Laura is the founder of The Bonnell Foundation. Her two daughters live with cystic fibrosis, and her podcast has become a gathering place for the rare disease community. When she invited us on, the idea was simple: different diagnoses, same journey. CF and mitochondrial disease are not the...

This weekend we’re highlighting two parts of our ecosystem that support the families, caregivers, clinicians, and advocacy groups navigating chronic and rare illness every day. Mobility is a real challenge for many, especially when autonomic drift, fatigue, or GI complications make daily movement unpredictable. I spent time today on the DashMoto mobility scooter — lightweight, stable, and built for real‑world use inside and outside the home. We’re proud to be an authorized reseller, giving...

We are living through a shift that almost no one is talking about, yet every family feels. Illness today doesn’t look like it did twenty years ago. It doesn’t behave the same way, it doesn’t follow the same patterns, and it doesn’t respect the boundaries we once believed existed. Babies are facing conditions that were once seen only in adults. Adults are developing diseases that were once considered rare. Older adults are navigating treatment plans so complex they rival hospital protocols....