Michael Goldberg

This weekend we’re highlighting two parts of our ecosystem that support the families, caregivers, clinicians, and advocacy groups navigating chronic and rare illness every day. Mobility is a real challenge for many, especially when autonomic drift, fatigue, or GI complications make daily movement unpredictable. I spent time today on the DashMoto mobility scooter — lightweight, stable, and built for real‑world use inside and outside the home. We’re proud to be an authorized reseller, giving...

We are living through a shift that almost no one is talking about, yet every family feels. Illness today doesn’t look like it did twenty years ago. It doesn’t behave the same way, it doesn’t follow the same patterns, and it doesn’t respect the boundaries we once believed existed. Babies are facing conditions that were once seen only in adults. Adults are developing diseases that were once considered rare. Older adults are navigating treatment plans so complex they rival hospital protocols....

Some moments stay with you long after the hospital lights fade. Counting Ceiling Tiles was born in those hours — the quiet, heavy ones where you lie awake, trying to make sense of your own body, your future, and the uncertainty that keeps reshaping your life. Anyone who has lived through rare, chronic, or mitochondrial-driven conditions knows those nights. They’re not dramatic. They’re not loud. They are the moments where you learn how strong you are simply by getting through them. The...