Blog Posts

Hugs For Mito — Turning a Rare Disease Journey into a Force for Research and Recognition" What began as a personal battle became a nonprofit lifeline, fueling Mass General’s push to unravel mitochondrial mysteries and bring overlooked patients into the spotlight. Albert McKeon June 19, 2018 Suffering from mitochondrial disorders, Michael Goldberg is helping a Mass General clinician’s effort to better understand the mysterious group of diseases. Michael Goldberg wants to ease

No Option to Give Up — How Determination and ‘Hugs’ Became Michael Goldberg’s Lifeline and Legacy Even as mitochondrial disease tightened its grip, Goldberg’s resolve to show up for family — and fuel vital research — proved stronger than any setback. Chaiel Schaffel cschaffel@enterprisenews.com June 25, 2017 EASTON - His brow moist with sweat, Michael Goldberg couldn’t stop shaking as he lowered himself into his chair at the dining room table. He had just walked from his upst

Rare Leader — How Michael Goldberg Built Hugs For Mito on Grit, Grace, and a Global Call to Action From patient to powerhouse, Goldberg turned lived experience into a relentless advocacy engine, mobilizing community, research, and hope for every family facing rare disease. Global Genes, September 2018 The   Basics   Name : Michael Goldberg Title : Co-Founder Organization : Hugs For Mito Disease focus : The organization focuses on mitochondrial diseases and rare disease. Mitoc

Reliable MD and MediXo By 12 Brand: Aligning Clinical Insight with Scalable Innovation At MediXo By 12 Brand, every partnership is anchored in a simple but uncompromising principle — pairing technical excellence with human‑centered design to restore dignity and autonomy at scale. Our flagship solutions, Axis  and Go , form the foundation of a defensible MedTech ecosystem built for measurable impact in real‑world care environments and everyday use. Bringing Reliable MD  into t

I’m Rare. And I’m building for all of us. By Michael H. Goldberg, Founder | CEO MediXo By 12 Brand Earlier this week, I tuned into a Congressional Caucus Briefing focused on regulatory urgency and therapeutic opportunity in the rare disease space. The voices were powerful—advocates, foundation leaders, and families speaking with clarity and conviction. And as someone living with a rare disease, I didn’t just hear them. I felt them. Judi and I founded Hugs For Mito to fight fo

Founder Michael Goldberg reflects on urgency, innovation, and the lived experience that drives MediXo By 12 Brand. Last week, I spoke from lived experience. This week, I want to show what that experience builds. At MediXo By 12 Brand, we don’t just talk about urgency—we engineer for it. Axis and Go aren’t concepts. They’re responses. To delay. To fragility. To the silence that too often surrounds rare disease and complex illness. Every module, every advisor, every visual asse

When I look back at the early days of Hugs For Mito, what stands out most is the power of community. Families, patients, and supporters came together to fuel research at Mass General Brigham, and in doing so, we proved that grassroots energy can move the needle in rare disease care. That experience left a lasting mark on me — not just in what we accomplished, but in what it revealed: the gaps in connection, clarity, and comfort that patients and caregivers face every day. Med

We come to this work from lived experience — as patient and caregiver. That perspective drives everything we do. Our focus is simple: to support others who face the same challenges, to ease the burden on caregivers, and to help patients find dignity and better outcomes in their daily lives. Progress in healthcare isn’t just about technology; it’s about empathy, understanding, and creating solutions that truly serve people where they are. The journey is demanding, but it’s als

We’re honored to share that 12 Brand, Inc. | MediXo By 12 Brand has been named MedTech Development Company of the Year in the 2025/26 Corporate LiveWire Global Awards. This recognition reflects the dedication of our team, advisors, and partners as we work to build a defensible, patient‑centered MedTech ecosystem. We’re excited to carry this momentum into our next phase of development and partnerships, continuing to push for innovation that makes a real difference in people’s

Why Services-for-Equity Partnerships Are the Future of MedTech Manufacturing Bringing a medical device from concept to clinic is one of the most challenging journeys in innovation. For companies tackling rare disease and complex illness, the stakes are even higher: patients and families are waiting, and every delay matters. Traditionally, manufacturers have relied on fee-for-service models. It’s understandable — they have employees to pay, facilities to maintain, and investor

The Hidden Tax of Rare Disease & Complex Illness: Why Medical Devices Must Honor the Lives They Sustain By Michael Goldberg, Co-Founder & CEO, 12 Brand, Inc. | MediXo By 12 Brand Have you ever witnessed that moment? A phone buzzes with a medication reminder during a job interview. A child's insulin pump starts beeping during their school play. A grandmother hides her oxygen concentrator when friends visit, choosing breathing difficulties over "being a burden." These aren't ju

The Quiet Revolution: How Connected Medical Devices Are Becoming Lifelines for Rare Disease and Complex Illness Communities We've spent countless mornings immersed in our own health tracking rituals. The meticulous logging, the careful documentation—not because we wanted to, but because complex illness demands it. When you're living this reality, tracking isn't optional. It's survival. Here's what keeps me up at night: millions of us are generating vital health data every sin